Loom Knitting for Independence

2017 Annual SMA Conference

The 2017 Annual SMA Conference will be held in Orlando, FL at Disney’s Contemporary Resort from Thursday, June 29th through Sunday, July 2nd, 2017.

Every year, Cure SMA sponsors a conference to bring together the leading SMA researchers, clinicians, and families living with SMA. The conference brings together researchers, healthcare professionals, and families to network, learn, and collaborate. The Annual SMA Conference is the largest conference in the world for those affected by SMA, and also for those involved in providing support and care for SMA patients.

The weekend is filled with a wide variety of workshops, keynote sessions with leading researchers, a family-friendly research poster session, and more—plus fun events like the meet-and-greet/family fun fest, a pajama party & movie night as well as teen and adult social activities. There are also many opportunities to connect and interact with other SMA families and to receive first hand updates from the researchers.

I have never attended one of these conferences, but with the recent FDA approval of Spinraza to treat SMA, I am very interested in going to the conference to learn more. I applied and was approved for a scholarship that will cover the conference registration fees for Eric and I. The hotel and food costs will still be quite expensive. Sales of any items on my site or custom requests now through the end of June will go towards attending the conference. If you want to help out without making a purchase, please send a check to Peggy Overbey, 1807 NE 16th Pl, Ocala, FL 34470 or donate through the PayPal button at the bottom of the page.

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