Loom Knitting for Independence

About Me

I was born in 1965 and diagnosed at the age of 2 with Spinal Muscular Atrophy (SMA) Type I. SMA is a progressive degenerative muscle disease and one of the over 40 diseases listed under the overall name of Muscular Dystrophy. The rate at which you lose the ability to do things like walk, stand, lift your arms, etc. depends on the severity of the disease.

I went through several stages in life from being able to walk with braces, being able to only stand with braces, to being in an electric wheelchair all the time. I don’t remember having a particularly hard time giving up the walking/standing. To tell the truth, I think I was relieved as it just seemed like too much bother. I didn’t need to walk. I had my arms and pretty much did whatever I chose to do in life. The changes from that point were slow and subtle until one day after working for 23 years, I realized that I just didn’t have the strength to continue doing so.

I also want to tell you what a wonderful family I had growing up. I don’t ever remember my parents treating me differently or giving me the impression that they expected any less of me than they did of my two able-bodied brothers. I went to public schools, graduated with honors, started working as a senior in high school, went to college, got married, and generally live my life just like everybody else.

Me & Apollo KnittingToday I essentially have the abilities of a quadriplegic who has lost the use of arms and legs and have only the use of my hands remaining. If my arms are positioned correctly (by others), I am able to use a hand loom to knit the items I list for sale on this web site. Here is a photo showing me at work with my loom and my service dog Apollo closely monitoring my every stitch. Unfortunately, Apollo crossed the Rainbow Bridge in 2014. He was a great help when needed and I miss him every day.

Apollo was one of the best things that ever happened in my life, but there were things that even he couldn’t do for me. So check out my blog posts to learn about the different technology and equipment that I find interesting. My first post about the Jaco robotic arm (see the menu to the right) explains one piece of technology that I am trying to get.